Pengalaman Hidup Emerging Adulthood dengan HIV Perinatal: Narrative Review
DOI:
https://doi.org/10.29313/bcsps.v6i2.24243Keywords:
HIV Perinatal, Pengalaman Hidup, Dewasa MudaAbstract
Abstract. Individuals with perinatal HIV face various challenges from birth through adolescence and emerging adulthood, which are related not only to their health status but also to their psychosocial development and quality of life. This study aims to understand the life experiences of individuals with perinatal HIV through a narrative review to gain a more comprehensive understanding of their challenges, coping strategies, and psychosocial needs. The research method employed a narrative review of qualitative articles obtained through a search of several electronic databases covering the publication years 2021–2026. The synthesis results indicate that individuals with perinatal HIV face stigma and dilemmas regarding HIV status disclosure, various psychosocial challenges, and the pressure to become independent during the transition to adulthood. Support from family, peers, and healthcare providers serves as a protective factor that aids the adaptation process. These experiences help shape motivation, self-acceptance, and resilience, enabling individuals to maintain hope and view the future more positively. These findings highlight the importance of HIV services that not only focus on clinical aspects but also address psychosocial needs to support the quality of life of individuals with perinatal HIV.
Abstrak. Individu dengan HIV perinatal menghadapi berbagai tantangan sejak lahir hingga memasuki masa remaja dan emerging adulthood, yang tidak hanya berkaitan dengan kondisi kesehatan, tetapi juga perkembangan psikososial dan kualitas hidup. Penelitian ini bertujuan untuk memahami pengalaman hidup individu dengan HIV perinatal melalui narrative review untuk memperoleh pemahaman yang lebih komprehensif mengenai tantangan, strategi adaptasi, dan kebutuhan psikososial mereka. Metode penelitian menggunakan narrative review terhadap artikel kualitatif yang diperoleh melalui penelusuran pada beberapa basis data elektronik dengan rentang publikasi tahun 2021–2026. Hasil sintesis menunjukkan bahwa individu dengan HIV perinatal menghadapi stigma dan dilema dalam pengungkapan status HIV, berbagai tantangan psikososial, serta tuntutan untuk menjadi mandiri selama transisi menuju dewasa. Dukungan dari keluarga, teman sebaya, dan tenaga kesehatan berperan sebagai faktor protektif yang membantu proses adaptasi. Berbagai pengalaman tersebut turut membentuk motivasi, penerimaan diri, dan resiliensi sehingga individu mampu mempertahankan harapan serta memandang masa depan secara lebih positif. Temuan ini menunjukkan pentingnya layanan HIV yang tidak hanya berfokus pada aspek klinis, tetapi juga memperhatikan kebutuhan psikososial untuk mendukung kualitas hidup individu dengan HIV perinatal.
References
Ashaba, S., Zanoni, B. C., Baguma, C., Tushemereirwe, P., Nuwagaba, G., Kirabira, J., Nansera, D., Maling, S., & Tsai, A. C. (2023). Challenges and fears of adolescents and young adults living with HIV facing transition to adult HIV care. AIDS and Behavior, 27(4), 1189–1198. https://doi.org/10.1007/s10461-022-03856-6
Aurpibul, L., Khamrong, C., Kotchawat, K., Thammalangka, R., Taweehorm, W., Masurin, S., & Maneerat, N. (2025). Identification of intrinsic motivation for HIV self-care: Photovoice of young people living with perinatal HIV in Northern Thailand. Journal of the International Association of Providers of AIDS Care, 24, 23259582251400817. https://doi.org/10.1177/23259582251400817
Aurpibul, L., Tangmunkongvorakul, A., Detsakunathiwatchara, C., Masurin, S., Srita, A., Meeart, P., & Chueakong, W. (2023). Social effects of HIV disclosure, an ongoing challenge in young adults living with perinatal HIV: A qualitative study. Frontiers in Public Health, 11, 1150419. https://doi.org/10.3389/fpubh.2023.1150419
Aurpibul, L., Tangmunkongvorakul, A., Detsakunathiwatchara, C., Srita, A., Masurin, S., Meeart, P., & Chueakong, W. (2024). "I want to be healthy and move on": A qualitative study of barriers and facilitators to antiretroviral treatment adherence among young adult survivors with perinatal HIV in Thailand. PLOS ONE, 19(7), e0305918. https://doi.org/10.1371/journal.pone.0305918
Fair, C., Fraser, L., Zendt, M., Santana-Garces, M., Homans, J., Stek, A., & Operskalski, E. (2023). "We are not different than others": A qualitative study of the lived experience of Hispanic adolescents and young adults living with perinatally acquired HIV. International Journal of Environmental Research and Public Health, 20(4), 2996. https://doi.org/10.3390/ijerph20042996
Henderson, M., Fidler, S., & Foster, C. (2024). Adults with perinatally acquired HIV: Emerging clinical outcomes and data gaps. Tropical Medicine and Infectious Disease, 9(4), 74. https://doi.org/10.3390/tropicalmed9040074
Ibrahim, N., Viard, J. P., Ludot-Grégoire, M., Lachal, J., Dumas, A., Brazille, P., Lechat, D., Bridou, S., Molinari, D., Hassler, C., & Rouquette, A. (2024). Sexual health of young adults living with perinatally acquired HIV in Paris, France: A qualitative study. AIDS Patient Care and STDs, 38(10), 477–486. https://doi.org/10.1089/apc.2024.0124
Joint United Nations Programme on HIV/AIDS. (2025). Global HIV & AIDS statistics—Fact sheet. UNAIDS. https://www.unaids.org/en/resources/fact-sheet
Karugaba, G., Thupayagale-Tshweneagae, G., Moleki, M. M., & Matshaba, M. (2023). Challenges and coping strategies among young adults living with perinatally acquired HIV infection in Botswana: A qualitative study. PLOS ONE, 18(4), e0284467. https://doi.org/10.1371/journal.pone.0284467
Lowenthal, E. D., Bakeera-Kitaka, S., Marukutira, T., Chapman, J., Goldrath, K., & Ferrand, R. A. (2014). Perinatally acquired HIV infection in adolescents from sub-Saharan Africa: A review of emerging challenges. The Lancet Infectious Diseases, 14(7), 627–639. https://doi.org/10.1016/S1473-3099(13)70363-3
Mangold, J. F., Goswami, R., Nelson, A. N., Martinez, D. R., Fouda, G. G., & Permar, S. R. (2021). Maternal intervention to prevent mother-to-child transmission of HIV: Moving beyond antiretroviral therapy. The Pediatric Infectious Disease Journal, 40(5S), S5–S10. https://doi.org/10.1097/INF.0000000000002774
Mellins, C. A., & Malee, K. M. (2013). Understanding the mental health of youth living with perinatal HIV infection: Lessons learned and current challenges. Journal of the International AIDS Society, 16(1), 18593. https://doi.org/10.7448/IAS.16.1.18593
Oliveira, C., Teixeira, F., Gonçalves, M., & Maia, Â. (2026). Growing up with HIV: (Non)adaptive processes in perinatally infected adolescents and young adults. AIDS and Behavior, 30(5), 1459–1470. https://doi.org/10.1007/s10461-025-04979-2
Sattoe, J. N. T., Weijsenfeld, A., van Balen, N., van der Knaap, L., & van Staa, A. (2026). Transition to adulthood and adult care: Lived experiences of young adults with perinatal HIV in the Netherlands. AIDS and Behavior, 30(7), 2224–2233. https://doi.org/10.1007/s10461-026-05047-z
Siddaway, A. P., Wood, A. M., & Hedges, L. V. (2019). How to Do a Systematic Review: A Best Practice Guide for Conducting and Reporting Narrative Reviews, Meta-Analyses, and Meta-Syntheses. Annual review of psychology, 70, 747–770. https://doi.org/10.1146/annurev-psych-010418-102803
Slogrove, A. L., Schomaker, M., Davies, M. A., Williams, P., Balkan, S., Ben-Farhat, J., Calles, N., Chokephaibulkit, K., Duff, C., Eboua, T. F., Kekitiinwa-Rukyalekere, A., Maxwell, N., Pinto, J., Seage, G., 3rd, Teasdale, C. A., Wanless, S., Warszawski, J., Wools-Kaloustian, K., Yotebieng, M., … Leroy, V. (2018). The epidemiology of adolescents living with perinatally acquired HIV: A cross-region global cohort analysis. PLOS Medicine, 15(3), e1002514. https://doi.org/10.1371/journal.pmed.1002514
Solomon, N., Molla, M., & Ketema, B. (2021). "I want to perform and succeed more than those who are HIV-seronegative": Lived experiences of youth who acquired HIV perinatally and attend Zewditu Memorial Hospital ART clinic, Addis Ababa, Ethiopia. PLOS ONE, 16(5), e0251848. https://doi.org/10.1371/journal.pone.0251848